LearnEDS.org
EDS/ Ehlers-Danlos Syndromes & HSD/ Hypermobility Spectrum Disorder
Providing Support & Resources about Connective Tissues Disorders:
Support Groups
Coffee Socials: Every Second Saturday of the month
Men's Support Group Meeting: Every Third Thursday of the Month
State-Wide Support Group Meeting: Every Last Thursday of the Month
Teen/Tween Support Groups: To Be Announced Soon
Online Coffee Social
Zoom Link:
https://us02web.zoom.us/j/81802057493?pwd=cVY2K3VXL3ZyT0VHMm96cG1SWEJ1UT09
Welcome!
This is a very casual Zoom meet & greet to connect with others who share many things in common with you. Dress comfortable and bring a fun coffee cup to break the ice! Check in with friends and meet new ones!
We welcome anyone who has been diagnosed or who is seeking diagnosis of either EDS, Dysautonomia or related conditions to join us for this online "Coffee Social".
These conditions can often leave us feeling misunderstood, isolated, or alone. Join us and you will learn, you aren't alone at all!
EDS/Dysautonomia
State-Wide Support Group
Welcome!
Join Zoom Link: https://us02web.zoom.us/j/82557208704?pwd=OXpQZGVZWkRzTy9JUlFORFlBYVRtZz09
This support group invites anyone who is affected by Ehlers-Danlos syndromes or related conditions such as Dysautonomia, Mast Cell Activation Syndrome, Gastroparesis. We offer hope, support and resources as we realize how difficult it can be to learn how to manage all of the symptoms that come along with these conditions.
Those who are affected by these conditions, whether personally or by having a loved one who has these, can often feel isolated and alone, misperceived, misunderstood and need the help and support of others who understand what they're going through.
We meet every last Thursday of each month online through the Zoom platform.
We encourage everyone to log in as early as 30 minutes prior to 7pm. We like to start promptly at 7pm. You're welcome to stay 30 minutes after the meeting is over to continue interacting with one another. We hope to see you there!
While this is a group that was created for the people in the state of Louisiana, if you are outside of LA, we extend an invitation to you as well if you are needing support or if you would like to contribute positive support.
Welcome!
To attend this meeting, you must first register your name and email address into Registration Link::
https://us02web.zoom.us/.../tZ0tdu...
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For many years, we've noticed that the ladies far outnumbered the men who've attended our support groups. This is a place that was created so men can feel more able to open up and share their issues with other men about what they're going through.
This support meeting is for those affected by Ehlers-Danlos syndromes, Hypermobility Spectrum Disorder, Dysautonomia and other related disorders. Husbands of spouses who suffer with these conditions are also encouraged and welcomed to attend.
Come to give and get support from others who understand. If you are doing well and don’t need support at this time, consider attending to give support to others who may be struggling. We are Stronger Together!