Ehlers-Danlos Syndromes (EDS) & Hypermobility Spectrum Disorders (HSD)
Providing Support & Resources about Connective Tissues Disorders:
Online Coffee Social
Every Second Saturday of each Month!
This is a very casual Zoom meet & greet to connect with others who share many things in common with you. Dress comfortable and bring a fun coffee cup to break the ice! Check in with friends and meet new ones!
We welcome anyone who has been diagnosed or who is seeking diagnosis of either EDS, Dysautonomia or related conditions to join us for this online "Coffee Social".
These conditions can often leave us feeling misunderstood, isolated, or alone. Join us and you will learn, you aren't alone at all!
State-wide Support Group Meeting
Every Last Thursday of each Month!
This support group invites anyone who is affected by Ehlers-Danlos syndromes or related conditions such as Dysautonomia, Mast Cell Activation Syndrome, Gastroparesis. We offer hope, support and resources as we realize how difficult it can be to learn how to manage all of the symptoms that come along with these conditions.
Those who are affected by these conditions, whether personally or by having a loved one who has these, can often feel isolated and alone, misperceived, misunderstood and need the help and support of others who understand what they're going through.
We meet every last Thursday of each month online through the Zoom platform.
We encourage everyone to log in as early as 30 minutes prior to 7pm. We like to start promptly at 7pm. You're welcome to stay 30 minutes after the meeting is over to continue interacting with one another. We hope to see you there!
While this is a group that was created for the people in the state of Louisiana, if you are outside of LA, we extend an invitation to you as well if you are needing support or if you would like to contribute positive support.
