Ehlers-Danlos Syndromes (EDS) & Hypermobility Spectrum Disorders (HSD)
Providing Support & Resources about Connective Tissues Disorders:
Be Counted
This registry has been created by EDS Louisiana, Inc. to help us get as accurate of a count as possible of how many Zebras live in our state. All personal information gathered here will remain confidential and will never be sold to any third parties. If you live in Louisiana and have been diagnosed with either EDS or HSD, or if you are actively seeking diagnosis, we welcome you to REGISTER here. Please pass the word along! Please be sure to register every person in your family/household who meets this criteria.
Support
EDS Louisiana is here to provide support for anyone diagnosed with an Ehlers-Danlos syndrome or any of its related disorders, as well as anyone currently seeking diagnosis and answers. We understand and know how complicated and long that journey can be, and can relate to how lonely it can feel at times. Our goal is to help others realize that you are never alone in this journey. We strive to help family members of those who are on this journey know that they too have support, as we know that they have an incredibly hard journey themselves and want them to know their concerns are valid too! If you feel EDS Louisiana could be helpful to you, a loved one, a family member, or a friend, please reach out to us on our EDS Louisiana Zebra Face Book page or contact us via email using the link below.