Ehlers-Danlos Syndromes (EDS) & Hypermobility Spectrum Disorders (HSD)
Providing Support & Resources about Connective Tissues Disorders:
When you Donate
When you donate, your contribution goes to helping us achieve our mission and goals of supporting those impacted by EDS and HEDS throughout the state of Louisiana. Here are just a few ways that your donations are used in those efforts..
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Building a resource library where members can check out books about EDS or related disorders for free.
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Providing printed resources for physicians/medical providers, school systems, and members for ongoing education purposes within our communities.
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Hosting webinars and monthly support group meetings.
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Mailing support materials to members statewide (or to members who have temporarily relocated out of state).
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Distributing Care Packages to our EDS Community members during their time of need.
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Spreading online awareness by using technology such as our website, Advertising and Social Media efforts.
Thank You
for your donation
Thank you to everyone who joyfully sows into our official charity. You will be provided with an official tax deductible receipt when you give. We rely solely upon donations to continue the work we have started.
Since we began in 2019, we've been a witness to seeing hundreds of lives being supported, changed and we believe many lives will continue to be saved as a result of our supportive & educational outreaches. To date, over 350 personalized care packages have been mailed out to those needing encouragement, support & educational information. We have only just begun!
We desire to continue being a light, bringing hope to the many who need to know there is help for the many complex medical issues that have long been overlooked. We will continue to support medical professionals by providing them with support and educational materials so less & less of our people will have to continue going decades before finally receiving answers and help to their many complex & confusing symptoms.
If you would like to help plan an event to bring awareness to your community, or if you would like to help create a fundraiser, we sincerely thank you.