Resources | EDS Louisiana, Inc.

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EDS Louisiana, Inc.

Ehlers-Danlos Syndromes (EDS) & Hypermobility Spectrum Disorders (HSD)

Providing Support & Resources about Connective Tissues Disorders:

Image by 🇸🇮 Janko Ferlič

Resources

DISCLAIMER FOR EXTERNAL LINKS

EDS Louisiana, Inc. bears no responsibility for the accuracy, legality or content of the external site or for that of subsequent links. These links are being provided as a convenience and for informational purposes only. They do not constitute an endorsement or an approval by EDS Louisiana, Inc. or any of the products, services or opinions of the corporation, organization or individual. Contact the external site for answers to questions regarding its content.

Ehlers-Danlos Society

Click below to access resources which can be filtered by category.

Chronic Pain Partners

Chronic Pain Partners offer a vairety of resources including patient guides that can be accessed below

The School Tool Kit

Free resources for staff and parents to help support pupils with Hypermobility Spectrum Disorders or Ehlers-Danlos syndromes (EDS)

Children

CEDSA.org offers educational and legal advocacy for children suffering from Ehlers Danlos Syndromes. Click below to access resources for support.

Self-Care

Resources

5 Ways to Take Care of Yourself

5 Ways to Take Care of Yourself

an infographic with tips on how to take care of yourself.

5 Ways to manage EDS Symptoms

5 Ways to manage EDS Symptoms

an infographic that details information on how to manage and treat EDS symptoms.

5 Exercises to Practice Gratitude

5 Exercises to Practice Gratitude

an infographic with exercises on practicing gratitude

5 Min. Well-being Check

5 Min. Well-being Check

an infographic that includes well being check

Spoon Theory

an infographic to assist in pacing yourself using the spoon theory.

The Long and Winding Road

The Long and Winding Road

an infographic that provides an example on the road to diagnosis for EDS

We've set up a Spotify EDS Louisiana account and are curating song lists for our Zebras. Take a look at our first playlist below:

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