Ehlers-Danlos Syndromes (EDS) & Hypermobility Spectrum Disorders (HSD)
Providing Support & Resources about Connective Tissues Disorders:
Recent News and Activities
EDS Louisiana- 5 Year Birthday Celebration
We are celebrating our 5 year anniversary at EDS Louisiana and want to thank all of our followers, volunteers, and supporters for your continued support over these past 5 years. Without you, we would not be able to support our EDS community! As part of our celebration we are continuing to give back to our community and our supporters by offering free infographics, a new youtube channel and an October giveaway! As always, we appreciate your efforts to help us grow our community and are providing links below to help you like, follow, share and donate. To participate in our giveaway, simply complete the form below. Thanks for all you do!
Enjoy this and other videos on our EDS Louisiana youtube channel
We've set up a Spotify EDS Louisiana account and are curating song lists for our Zebras. Take a look at our first playlist below:
We are so proud of our accomplishments during the past five years and are looking forward to an even brighter future. Check out some of our highlights over the past five years below.
Social Media
1000 Followers on FB
New Instagram Account
New You tube Account
New Spotify Account
Education and Care Packages
100's of care packages sent out to our Zebra members this year and nearly 30 Educational packages sent out to Medical Professionals.
Events
EDS Louisiana has attended Events across the state each year in hopes to increase awareness and educate Medical Professionals.
Advocacy
Each year during May Awareness month, EDS Louisiana advocates for Zebras across Louisiana by spreading awareness through Proclamations and Lighting up the state capital and Superdome.
News and Activities Awareness Month 2024
Awareness Activities
Many Thanks to Mona Hebert, our Executive Director, for all that she's done to make Awareness Month successful. As a result of Mona's work May was declared Ehlers Danlos Syndromes and Hypermobility Spectrum Disorder Month.
Representative Stephanie Hilferty presented and read aloud the proclamation presented by Governor Jeffery Landry.
As part of Awareness month, The State Capital and Caeser Super Dome were lit up in colors representing EDS and HSD Syndromes. These achievements are all part of our continued effort to increase awareness of these syndromes in an effort to bring better care to our EDS/HSD community.
Educational Materials
We received many requests for educational materials. Hundreds of brochures, ribbons and cards were mailed out to all who sent in requests. We will continue to take requests as we see the great need for it!
If you would like to receive Educational materials , click the link below and complete the form provided. Please allow ample time for us to prepare and mail these educational packets since we are a volunteer organization & are made up of strictly volunteers of which mostly are each affected by EDS or HSD.