LearnEDS.org
EDS/ Ehlers-Danlos Syndromes & HSD/ Hypermobility Spectrum Disorder
Providing Support & Resources about Connective Tissues Disorders:
EDS (Ehlers-Danlos syndromes) are a group of underlying genetic conditions which can greatly affect the way a person is built due to faulty connective tissues. Connective tissues, or collagen, connect every part of our bodies. When they are faulty, this can lead to an array of problems. Many lives are impacted without ever knowing or understanding that these are true medical conditions and many may live decades, or even their entire lives without ever receiving answers, validation or treatments. While there are no cures, there are ways to manage the many symptoms that can be challenging to live with.
Recent News & Activities:
MAY was EDS/HSD AWARENESS MONTH!
There's So Much to Share!
Many Thanks to Mona Hebert, our Executive Director for all that she's done to make Awareness Month successful !!!
It was our great hope that education & awareness would be spread throughout each & every corner of our state. We received many requests for educational materials. Hundreds of brochures, ribbons and cards were mailed out to all who sent in requests. We will continue to take requests as we see the great need for it!
Simply press below and it will take you to an online form.
Please be patient with us and remember that we are a volunteer organization & are made up of strictly volunteers of which mostly are each affected by EDS or HSD.
Awareness ribbons & educational materials are available to anyone who requests them.
If you are able to donate funds to help with the materials/shipping/delivering of the materials, please do!
Simply press:
Let's each do our part to help make
EDS & HSD become household names !
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If you have been diagnosed with a form of dysautonomia, please have a look at the photograph above. If several of the poses are rather familiar to you, you should read up about Ehlers-Danlos syndromes (EDS).
This is an excellent video summing up what EDS patients experience. While EDS is a group of underlying genetic conditions, the condition in this video (POTS, which is one form of dysautonomia,) is one of the most common conditions found within EDS patients.
* PLEASE SHARE EVERYWHERE.*
There is a severe shortage of cardiologists in our state of Louisiana who recognize it, treat it and understand it completely. As patients learn through awareness, that there are answers to their lifelong health mysteries, they are having to wait to be seen and diagnosed for over a year and some over 3 years. WE HAVE TO CHANGE THIS.
EDS Louisiana, Inc. is stepping out this year of 2023 and making it a priority to bring clear awareness to the medical community.
Anyone who would like to help see this happen, please join us in this outreach!
Our Mission
The mission of EDS Louisiana, Inc. is to provide support and resources to Louisiana patients and medical professionals about Ehlers-Danlos syndromes and related conditions via awareness and education.
Our Vision
Our vision is a better Louisiana where Ehlers-Danlos syndromes and related conditions are fully understood, treated, and supported.
EDS Louisiana, Inc. is a 501(c)(3) nonprofit organization and operates strictly on a Volunteer basis.
Do you ever find yourself feeling alone?
Come on out and meet other Zebras like yourself at our
Support Group Meetings!
